LBDA

Participate in Research

If you or someone you know has LBD:

If you are a Researcher:

Did you know? Both healthy individuals and people with LBD can participate in research. People of all races and ethnicities are urgently needed!

LBDA may be able to help more people learn about your study! To initiate a request, please download, complete and return this form to LBDA.

The following research studies and clinical trials are actively recruiting people with dementia with Lewy bodies (DLB) or Parkinson’s disease dementia (PDD). Find a study near you and contact the study coordinator to see if you may qualify.

For more information on clinical trials, visit www.clinicaltrials.gov.


The aim of this study is to develop a test that can detect a problem in the body’s ability to regulate a type of fat (also called a lipid) in nerve cell membranes. This specific lipid is called a sphingolipid. A test for a ‘bad sphingolipid’ would be helpful in developing treatments for cognitive symptoms of LBD.

The aim of this study is to determine what features can help identify different sub-types of LBD. This includes studying the symptoms and using brain imaging to detect whether one or more disease process is unfolding in the brain.

The purpose of this study is collect clinical information, brain imaging scans, and biological samples from people with dementia with Lewy bodies. The information and samples collected will be analyzed for discovery of new biomarkers (biological signs) of DLB. People with mild cognitive impairment associated with Lewy body dementia are also needed.

A clinical study of an investigational medication, nelotanserin, is now recruiting. Research participants who have dementia with Lewy bodies (DLB) plus REM sleep behavior disorder (physically acting out dreams during sleep) are needed.

The aim of this study is to develop better biomarkers for diagnosis and treatment of Lewy body disorders.