Press Releases

Atlanta, GA—12/14/15—Todd Graham, vice-president of the Lewy Body Dementia Association (LBDA) Board of Directors has announced that Michael Koehler has been named chief executive officer (CEO) for the association. “Mike, who has been our board president for the last three years,” is the ideal candidate to lead the association,” said Graham, who headed up the national search committee for the new position. “After reviewing all the candidates nationwide, we found the most qualified candidate within the organization,” he added.

Atlanta, GA--11/2/15—For the first time, an advocate for the Lewy body dementia (LBD) community, Angela Taylor, Director of Programs at the Lewy Body Dementia Association (LBDA), has been named a member of the U.S. Department of Health & Human Services (HHS) Advisory Council on Alzheimer’s Research, Care and Services.

Atlanta—November 4, 2015—Yesterday, Susan Williams, Robin Williams’ widow, spoke on Good Morning America (GMA) and in other media, about it taking the past year for her to learn that Robin was suffering from Lewy body dementia (LBD), which she believes led him to take his own life. Susan Williams explained that the original Parkinson’s diagnosis did not cover all of his symptoms, and he was unaware of the LBD diagnosis when he died.

ATLANTA (OCTOBER, 2015) — In its sixth year, during the month of October, the disease with the unusual name of Lewy body dementia (LBD) is being heralded as Lewy Body Dementia Awareness Month nationwide. Texas also recently designated October as Lewy Body Dementia Awareness Month for the Lone Star state. The Lewy Body Dementia Association (LBDA) is determined to keep sharing information until LBD rolls off the tongue as easily as other well-known diseases.

The Lewy Body Dementia Association (LBDA) mourns the passing of a special friend, Dorothy “Dottie” Mangurian.  The inspiration for the Harry T. Mangurian Jr. Foundation’s visionary commitment to the cause of Lewy body dementia (LBD), she died in Fort Lauderdale, Florida on March 28, 2015 after a 15-year battle with LBD. 

The sad news of hockey legend Stan Mikita’s illness has brought unexpected visibility to a disease unfamiliar to many people. The Lewy Body Dementia Association offers its support to the family, friends and fans of Stan Mikita. Mr. Mikita’s family announced today he has been diagnosed with suspected Lewy body dementia (LBD), one of the most debilitating forms of dementia. LBD affects 1.4 million Americans. 

ATLANTA (December 19, 2014) — Lewy body dementia (LBD) — a complex, challenging and surprisingly common brain disease — is often misdiagnosed as its “cousin,” Alzheimer’s disease.  And that could lead to devastating results.

ATLANTA (November 25, 2014) The recent news that the brain of actor/comedian Robin Williams showed signs of diffuse Lewy body disease has created more interest and coverage in this widely under-diagnosed condition than ever before. However, it can be difficult for the lay person to understand this complicated disease, and the Lewy Body Dementia Association offers information to clarify the confusion.