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Publications

LBDA provides relevant resources on LBD to assist LBD patients, their families and physicians.  Additional resources are in development, so check back here on a regular basis.

 To order LBDA publications in larger quantities, please click here.

 

9/1/2011 - LBD is a complex disease that can present with a range of physical, cognitive, and behavioral symptoms. Many caregivers find that behavioral symptoms (e.g., hallucinations, delusions, aggression, agitation, apathy, depression and anxiety) are the most distressing and difficult-to-treat aspects of LBD. This paper discusses some of the causes of behavioral symptoms, as well as strategies and treatments to reduce their frequency and severity.

Includes definitions for LBD-related medical terminology, classes of medicines and caregiving terms, plus types of services and resources helpful in LBD caregiving.

02/14/2011 - While many people find it uncomfortable to consider the likely difficult caregiving needs of end-stage LBD, palliative care and hospice are two important resources that make a difference not just for the person with LBD, but for the caregiver as well.

07/11/2010 - Nearly 80% of people with Lewy body dementias (LBD) received a diagnosis for a different cognitive, movement or psychiatric disorder before ultimately learning they had Lewy body dementia, according to LBD caregivers. Learn more about their experiences seeking medical care for LBD and the impact of being an LBD caregiver.

08/17/2009 - AlzForum recently turned to LBDA to provide answers to a broad assortment of caregiver questions. We are pleased to provide the first installment of answers to some of the most frequently asked caregiver questions.

04/01/2009 - LBDA original research on caregiver burden families affected by Lewy body dementia will be highlighted throughout 2009 at national medical conferences.

12/31/2008 - Everyone should know these 10 things about Lewy body dementias!

12/31/2008 - An Introduction to Lewy Body Dementia provides easy-to-read clinical information on Lewy body dementia in a patient friendly manner.

12/31/2008 - This Medical Alert Wallet Card has been developed to help you quickly inform Emergency Room medical professionals of important medication sensitivites in LBD. Present this card any time you are hospitalized, require emergency medical care, or meet with a new physician for the first time.

12/31/2008 - While real physical aggression is relatively rare, verbal aggression or belligerence is relatively common. Learn over a dozen ways to respond to aggressive behavior caused by dementia.