My mom is gone but not forgotten

Lynette · Tue Jun 07, 2011 5:50 am

My mom had LBD for 13yrs but was not diagnosed until 5yrs ago. Like most of you we went to many doctors looking for answers she had test for stroke/seizures - the list goes on. We finally met with a doctor who said she seems like another patient of mine that has LBD. I went to this website right away for research - help - and answers to my questions on what do we do now to make my mom better. Sadly we found out there was no cure.....but that was not going to be our mom. Everytime we were faced with another obstacle we faced it head on. We got physical/speech theraphy - medical equipment around the house to make life more independent for her. We monitored her bathroom trips checking her urine for order marked her bowel movements down to make sure she was going regular. Keep fluids going around the clock. This woman who I am proud to call my MOM was a fighter.....but one day the infection got the best of her and she didn't have the strength anymore to keep fighting even though she had the will too. What I want to tell each and everyone of you who is dealing with this disease....keep your self strong it is a disease no one should have to go through and you can make a difference in how that person spends the last years of their life......you will be greatful that you did. My mom taught me so much that I will pass along to my kids.......LOVE YOU MOM!