Caregivers
If you’re new to caregiving or experienced with providing for your loved one, we hope you find something here to utilize and inspire. We also invite you to examine the resources section (link) for more on other organizations and articles on LBD.
To get started, read this article by Tanis J. Ferman, Ph.D, et al (July 2005) which provides caregiver tips on communicating, routines, wandering, aggression, exercise, sleep, moving day, scheduling home help, caregiver stress, and support groups.
You may also wish to view this video from the Mayo Clinic on LBD. Select “See Video” from the page.
Support Groups
Caregiver Courses, Classes and Workshops
- The Center for Caregiver Training’s Caregiver 101: Challenges of Caring for Someone with a Serious Illness at Home
When: Anytime
Where: Online
Who: The Center for Caregiver Training helps people cope with serious illness at home, by teaching families and friends the basic, practical skills and strategies they need to care for their loved ones. Course is free. Not specific to Lewy Body Dementia.
Contact: Click here to take the course. - Family Caregiver Alliance’s new TeleCaregiving Workshop: Here But Not Here--Finding Hope When a Loved One Has Memory Loss
When: Wednesday, November 14, 2007 from 11:45 a.m. - 1:15 p.m. Pacific Time
Where: Teleconference
Who: Caregivers.
Topic: : If someone has had a prolonged illness or serious memory impairment, such as Alzheimer's disease, stroke, Parkinson's disease or Traumatic Brain Injury, family members may begin grieving the loss of the person's "former self" long before the time of death. Seeing their loved one as already "gone" intellectually can be just as painful as losing a life. Participants of this workshop will learn how this loss differs from ordinary loss; and the six guidelines for finding resiliency and discovering hope despite the stress and uncertainty in your loss. Contact: sponsored by California's Caregiver Resource Centers. To register, call the TeleCaregiving Registration Hotline at (800) 445-8106 x450 or register online. Pre-registration required. For more information, visit the Caregiver Alliance web site.
Stories
- Olivia and Lewy. A daughter's story about her mother Olivia.
- Amy's Story A 19-year-old daughter's story about her father.
- From Mother to Son A letter from a mother to her son, trying to explain what it is like to care for someone with LBD.
- Lewy Body Journal One family's continuing journey with the challenges of LBD.