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Testimonial

At the Lewy Body Dementia Association, we understand that many families are touched by Lewy body dementia. Whether you’ve been recently diagnosed, you’re a caregiver, a healthcare professional, or you’re looking for more information – we’re here for you. We’ve created our homepage to help LBD families quickly access up-to-date information about LBD to help prepare for some of the changes ahead. 

Learn more about LBD:

What is LBD?
Diagnosis
Symptoms
Treatment Options

Join our Online Communities!

Caregiver and Patient Forums
LinkedIn Community (brand new!)

 

An important website alert from LBDA

Some visitors who are accessing LBDA’s website via a Google search or the Firefox browser are temporarily receiving a warning that LBDA’s website may contain harmful software. This was due to a third party script that infected our website vendor’s server. Thankfully, the script was immediately contained and www.lbda.org is safe for all visitors to use.

Our website vendor is working closely with Google to remove the warning announcement, though it will take a day or two for that process to be complete. In the meantime, they will be moving our website to another server which has not been flagged by Google. Our site will be down briefly (less than an hour) sometime in the next 24 hours.

We appreciate your patience while this problem is fully resolved.
 

New resource for physicians treating Lewy body dementia

LBDA is pleased to provide medical professionals with the latest authoritative information on Lewy body dementia (LBD) through a new online resource. Physicians, nurses and other health care professionals will now find easy-to-read tables and figures on LBD diagnosis and treatment options along with family- and patient-centered publications that can be downloaded or ordered at no cost by clicking here. (Scroll down upon landing on page.)

LBDA is grateful to the Jerry Carpenter Lewy Body Disease Fund, a Subcommittee of the Turner Family Foundation, Foundation for The Carolinas, for its financial support in providing these free resources on LBD to physicians and the families they serve.

The materials were developed by the 20-member LBDA Scientific Advisory Council, an international group of experts in Lewy body dementia and related issues.

 

Research into Lewy body dementias is essential
in the fight against this terrible disease!

There are a number of ways YOU can help advance research!

  1. Participate in research studies as a healthy participant, or a person with LBD. Visit ClinicalTrials.gov and enter "Lewy" in the search field to find LBD clinical trials currently seeking participants.
  2. Consider making the ultimate gift to research - the gift of a brain donation. Click here to learn more.
  3. Support LBDA's efforts to advance research by making a gift today here. Your support of LBD research is the only way to help find answers for the LBD families of today and tomorrow.

Join us, and you too will be Increasing Knowledge, Sharing Experience, and Building Hope!

Read the Lewy Body Digest today!

The April, 2009 issue of LBDA's eNewsletter, the Lewy Body Digest, is now available online and features the following articles:

  • LBD Story - Caring for Lee 
  • LBDA Advances Understanding of Caregiver Burden 
  • Reaching Out to Physicians 
  • Making a Difference, One Person at Time 
  • How to Read a Research Paper 
  • How to Avoid Bath Time Battles 
  • Teenagers Spread the Word for LBDA 
  • LBD Blogs on the Rise

You can read the current issue and archives of the Lewy Body Digest by clicking here. 

It you don't already receive our newsletter, click here to subscribe to the Lewy Body Digest today!
  

Learning about Lewy body dementia - start here

The Lewy Body Dementia Association's newest publication, An Introduction to Lewy Body Dementia, is already in high demand by LBD families, physicians and aging resources.

An Introduction to Lewy Body Dementia is written especially for those newly diagnosed with Lewy body dementia and others still seeking answers. The booklet also includes a detachable medical alert card which refers to a companion webpage for emergency room physicians. You can view booklet online in English and Spanish by clicking here.

If you would like to receive a hardcopy of the booklet, please visit your local Area Agency on Aging or click here to learn how to request your copy of the booklet or wallet card by mail.

Here are some helpful materials to print out and read at your convenience.  (These materials can be viewed withAdobe Reader Adobe Reader, which can be downloaded for free from Adobe.)

For Families

 

 

For Professionals

 

 

 

 


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